Greetings fellow butterflies--
I wanted to pass this info on. I'm working out the finances now so that I can go to this event. It's time to get some legislation passed and get some $$$ into research to come up with better testing, better treatment, and hey, while we're at it...a CURE!!!
Now is the time to have your voice heard on Capitol Hill! Join the Lupus Foundation of America in Washington, D.C. for our 2008 Lupus Advocacy Day!
* Monday, March 10, 2008 - Westin Alexandria Hotel
* Tuesday, March 11, 2008 - Capitol Hill, Washington, D.C.
Our two-day 2008 Lupus Advocacy Program will begin on March 10th with a training session and dinner at the Westin Alexandria Hotel to discuss how to make the most of your meetings with your Members of Congress. The registration table opens at Noon and the training is scheduled to start at 2:00 p.m. We will have training until 6:00 p.m.; a "mix and mingle" reception from 6:00-7:00 p.m.; and dinner with a guest speaker from 7:00-8:30 p.m.
On Tuesday, March 11th, representatives of the LFA and its chapters, lupus physicians and researchers, and other advocates will travel to Capitol Hill to meet with Members of Congress to inform them about how debilitating lupus can be. We will have an informal breakfast at the Westin Alexandria Hotel starting at 7:00 a.m., load the buses at 8:00 a.m. and head to Capitol Hill. We will try to start with everyone’s meetings on the Senate side from 9 a.m.-Noon; a luncheon in the Dirksen Senate building from Noon-2:00 p.m.; meetings with Representatives from 2:00-4:00 p.m.; and an informal debrief session 4:30-6:00 p.m.
The LFA needs you, your friends, family members, and chapter members to visit your federal Representatives and Senators to urge them to support more funding for lupus research and education.
To register, go to www.lupus.org/newsite/pag...tration.htm. The registration fee for Lupus Advocacy Day is $35 per person, which includes a snack and dinner on March 10th and breakfast and lunch on March 11th.
The discounted room rate for the Westin Alexandria Hotel is $229 per night for the event. The cutoff date to book your hotel room for this discounted rate is February 22, 2008. To learn more, visit this link www.starwoodmeeting.com/StarGr...Web/res
One other note ... we've had several questions about which airport to fly into. The easiest airport to fly in to for the LFA Advocacy Day is Reagan National Airport (code: DCA).
Don’t let cost deter you -- you may be able to share a room! If you have any questions about the event, please contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.
I wanted to pass this info on. I'm working out the finances now so that I can go to this event. It's time to get some legislation passed and get some $$$ into research to come up with better testing, better treatment, and hey, while we're at it...a CURE!!!
Now is the time to have your voice heard on Capitol Hill! Join the Lupus Foundation of America in Washington, D.C. for our 2008 Lupus Advocacy Day!
* Monday, March 10, 2008 - Westin Alexandria Hotel
* Tuesday, March 11, 2008 - Capitol Hill, Washington, D.C.
Our two-day 2008 Lupus Advocacy Program will begin on March 10th with a training session and dinner at the Westin Alexandria Hotel to discuss how to make the most of your meetings with your Members of Congress. The registration table opens at Noon and the training is scheduled to start at 2:00 p.m. We will have training until 6:00 p.m.; a "mix and mingle" reception from 6:00-7:00 p.m.; and dinner with a guest speaker from 7:00-8:30 p.m.
On Tuesday, March 11th, representatives of the LFA and its chapters, lupus physicians and researchers, and other advocates will travel to Capitol Hill to meet with Members of Congress to inform them about how debilitating lupus can be. We will have an informal breakfast at the Westin Alexandria Hotel starting at 7:00 a.m., load the buses at 8:00 a.m. and head to Capitol Hill. We will try to start with everyone’s meetings on the Senate side from 9 a.m.-Noon; a luncheon in the Dirksen Senate building from Noon-2:00 p.m.; meetings with Representatives from 2:00-4:00 p.m.; and an informal debrief session 4:30-6:00 p.m.
The LFA needs you, your friends, family members, and chapter members to visit your federal Representatives and Senators to urge them to support more funding for lupus research and education.
To register, go to www.lupus.org/newsite/pag...tration.htm. The registration fee for Lupus Advocacy Day is $35 per person, which includes a snack and dinner on March 10th and breakfast and lunch on March 11th.
The discounted room rate for the Westin Alexandria Hotel is $229 per night for the event. The cutoff date to book your hotel room for this discounted rate is February 22, 2008. To learn more, visit this link www.starwoodmeeting.com/StarGr...Web/res
One other note ... we've had several questions about which airport to fly into. The easiest airport to fly in to for the LFA Advocacy Day is Reagan National Airport (code: DCA).
Don’t let cost deter you -- you may be able to share a room! If you have any questions about the event, please contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.
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Maine
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Re: Lupus Advocacy Day
Fri, February 8, 2008 - 3:46 PMBest of luck to those going. I am not able to go, but my thoughts will be with those who can!! Kick butt, and take names!!
